fabrysuisse · CH-8000 Zürich · Tel. · info@fabrysuisse.ch

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Centri di terapia in Svizzera

 

Helpline sulle malattie rare

Flyer


 

Fondazione SFFD

I professionisti in materia di medicina possono rivolgere le lore domande agli > Esperti di Swiss Foundation of Fabry Disease Fabry. La SFFD è un’organizzazione che opera in Svizzera con lo scopo di informare il personale sanitario medico e paramedico sulla malattia Morbus Fabry mettendo al centro dell’attenzione lo scambio professionale tra esperti. SFFD


Ospedale universitario di Zurigo
Centro universitario di cardiologia Zurigo

Ospedale universitario di Zurigo


Consiglio consultivo medicale

PD Dr. med. Albina Nowak
Dottoressa dirigente Endocrinologia
Rare Diseases
Universitätsspital Zürich
Raemistrasse 100
CH-8091 Zurich
Tel: +41 (0)43 253 8872
Fax +41 (0)44 255 44 47

Email   albina.nowak@usz.ch

FMH Innere Medizin / Medicina interna
FMH Nephrologie /Nefrologia

Zweite Affiliation:
Chefärztin Internistischer Dienst / Primario clinica internistica
Psychiatrische Universitätsklinik Zürich, Universität Zürich / Clinica universitaria per psichiatria

Titolare del premio Hemmi per le sue ricerche su:
„carenza di ferro e stanchezza“

Elenco delle pubblicazioni PD Dr. Nowak circa Morbus Fabry

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7JroTHQE2/GZVavaJwGuiN9Fooht1sgGMYy6rBNBxxAl2XJpOZ6rdp2EuxflsPoN04O74p0wL0Thkxurv3mq/zEprSMmy8Ae8gOdcGp96OWyuV+zlMCGH2bQO9UPee78IP1K2GAMBJMDc8sz0XK9puOkC6zxO8IPut1qO/JXXfRg/cweLBlMllMYk9XuO5KzPZXTu8563Bt1VmngXOJJcZxOf8A7KVFkySMtN+atdE1ZcsFc08RmMiV0vB+1D5DXgQR94xXJ0XYOJwAOoz8k6zBxqNcGkCCHYe7GGO6hNrtCUYvZ7BY7YHgb/VW5XG9l65MMdmW+hH6LqmkjmPmF24p842cWSPF0TkoFIOlBaFBySEpICJEFNRQDgimgooBySCIQBRTUUAUU2VNSo4SR5fogK9SpGXrp+q5rtRxR7G+zEkva8kzAa1kXnQNF01rXDdu3EPYwYGnTvE5d5zpHe1yyXN4yTjhdM6/AwU88U0UeztsPtnUyAJYHD6SfIhdDUrhuC5Kz0Sy0e3DmmabWFpBBgEE3SMAtC18SnENPmRtK86MoRVRPXn4XNKVuJsUnuebrRj9Budgrnsm09LztTljt+ircNf7NneEOdBdyOgnko7RbQBI8uZ3WvVdnDK2+tFm1Wu7Tc8wA3Aczv5Khwt/s2lx8dTFx1DR4WrNttpNSrToe6Je/o3E+pwSfaC5zschPmfsBgqylWiFEfxHiBfecT3GiSP7W5BcgS6q+XeJx9Acm+ULore27QduY+cQqHDLHJvRjEjoBAV8bpWRJdlR9KXxkMB0MfnirNkoGADniD1zUpst6QNXZ8sMfkrdQxddESBPzAPoobLIrWd9Oi286DiboOJG+eAhTcMtptb4pi63K86QM8MNlj8THtO6BzxwzJXXdluGezp34xwDecfqtIR5VZSb4psv9n7C+nVqh2NyBI3I/JdRSOCrcNs4Y0MPizk6uOYP2UzhdPL94Lvhj4xOCcuTHxBwyP7hSSoi8EYItVipJKSbKKAjRQSQDk4JiMoB6SaigHKSlSLum6bSLZ7376q62oIwIPTIIBU7OBlnvqm1ngIPe48vr+iFCyXz/bqd+QUgjs9OTfOQyG5XJ9ruFm0U6pbXLajgf5ZhrDAMC8cbxjRdxbiB3Rk0T+QXjnHKFSrUr1ZOLziZIuxdw2+y8/6hJKCv3PR+m43PI2nVIZSfLGkgglrSeoA/JW7BSEh593EefdvH0wVCyG81rRsB0GSvUq4D3NJhjgGAnRzTLTyH5rzo7Pp86l+j4r/UafEzBG33WVaKzi+NnAFaT619kHBzTDgcw4Yz5wsqu7EOHvR6yt7PAfXT9CvwqoXV6xPww31ACfZKsVDO8npGMp9CxuY5zj3b0dQ0YyfsFQuwS5wguODdQ2SRI3KttszNK3S9oYDrJ5Aan1V6wUg2kXxEiG9BgFmMeQwk5uMeuUrSdaQ0NaSYaAMMSSidKiJLsjpUA0Pe7IwAB0yCybdaHO70AQNMtoHIZK3xO3E6CBkNB13j5lQGym6A7F1SCZ02ASyUiPs/w11aoJmJlxiTzj6L02x0WNjDIYCMGjLD803stw5tmpDuzUf6xzOg3W2KO+epXpYMdK3s4c2Tk6WilUZIyQYbwuuz058uquinCiqUeXmutI52Zr6d0jHDkpwrdWzXpBGP7xVBgLe67MZHcbhZyjQTJZSQSVSRqKaigCiglKAcimohAS0myeQzQo0JfGQBJPQFD2kN6kKQXm0y+MXSfLRAPPtC8tp47zkOp0W0zASYwGmXko+H3fZtLRAInnOsndRW2rjdGQz6qQZ/Ea92lWqO91jnHyBK8qZbDUpNHevObkcBJbJacY5rvu2tpDLE5pzrODPImXH0C87tguU7t0fixknkei8f6m03GPqe/wDSMdQc36uvt/0g4acvNSVhPz6IUgAB0C2OB8MFaatQxTaYjV79hyGq50uTpHt5sqxRc5D7Ax9SldjEjxH4cmlx+m60bLw5tKScXDxPImCdGt35q2ys0PNNgm41z3E6uaO78zHkqziS1vQu6k6roikj5rJNyk3qyhxCoXPFFje8RJnG6Pif8TjoFUtHDA2RmdSdXfktXh7AHPfqQIPkoeKVQxs8vU8/qpfZROjDtjg5wa3JsDqRn5JlofBJPktDhnDzcNR2AzE6N3Ky7W6XTpoNhoOu5UPZpFjqNO+5gORMn8IxXQ8Ks96sajhIaYaz4nnwt+6x+FUS43tAMOv7xXoPZXhoaz+IfgI7gOxzf1dpyW+DHyn8IxzT4xNWw2YtEvPePiOg5DkrYBPL6/olQbPePkNv1Uj3L1EeeMgNUFY6KVyhqNV0RQTUhwQt1EEYaZclE84hWn4hSQZN0pK97IJKnBE2ZqSajKyJHBJBJAORTUi6EAabb9RrPM9Atu0sBAb+4GSz+BUPFUPvG6PwjM+qu35JP7gZKyDIeGVSw1KZyHeHnmPujUOBO+HqoqYl3WVYY2XtGjcSoBx/+IrsaFLZr3+sNH3WBSp0KtEMuuDmhznvm86QBOGjZ2Wp20q3rY8TgxjG+cXj9Vz9MljpZm7ulud8OwuxuV4Pjrnkdeh9Z4TB+qwS6e/v2Z/8O+4C52JBOWQGWOpXV8NpEljGiGtExtOJPOVtcM7OimxvtCXVBiQTLWuPugaxlKgsLIc6BeN0DkDrJ8lvh8LNNPJ6nmeL8csvUfQNnoNbegYuDiZzOWXJUJ7sfCbp6aH6q7ZRFVzicQHTt0Gyo2bNwPvMc7zBF35KciSlSOaLbVsq0auJw3AHSITnWZtR/tHmGMBzyJnPpghZaBc5zufpAxj0UFapeMe40XiMg6MGt6EqtliPi1vMYAhnut1eRgHO2A0CxKLHPJknEx9yOSvcVB7rM3uxcfhnl9la4bZxhsPzx+f0UWaKkjb4Bwj2r2047g7z+nw+f0XcVDecGt8LcBtI/LJZnA6dyjDR33uI/Va1mo3ZbOIj5r1MEFGKPOyzcpE3JROdoFJU5JrWR+a6TIjfsg4JNxKc9XIKz2qwzwqIhTNyQAhBFJCDFSSSXOWCEUkkAVHXy8wkkgNjhn9Fv4T905nh8kEldegIqPib0P2VixeN3QJJKqB5/wBof9XX/F/4tVbg/wDqqH/Fb90kl4sv2/5v7n16/dPyf4noFbIrD4X/APokkvWl5l/U+TjplRudXoqp/qf8t32QSXnZPOzsh5SSz/0D+F31WbQz8mIJKHokqWv/AFDvL/tK0bJkOjEUlUu9HccJzZ0d9VoM8b+o+iSS9fHpHnS2wuzSOiSS1KkNLNGqkkrsESm0SSUMgakkkhB//9k=


Per bambini

Clinica universitaria pediatrica di Zurigo
Prof Dr. med. M. Baumgartner
PD Dr. med. et phil. nat.  Marianne Rohrbach
Abteilung Stoffwechselkrankheiten insbesondere lysosomale Speicherkrankheiten
Kinderspital Zürich - Eleonorenstiftung / Dipartimento malattie metaboliche
Steinwiesstrasse 75
CH-8032 Zürich
Telefon +41 44 266 84 08
marianne.rohrbach@kispi.uzh.ch


Spital Linth


PD Dr. med. Pierre-Alexandre Krayenbühl

Chefarzt Klinik für Innere Medizin / Primario Medicina interna
Spital Linth
Gasterstrasse 25
8730 Uznach
Tel.: +41 (0)55 285 42 60
Fax: +41 (0)55 285 40 90
Email: Pierre-Alexandre.Krayenbuehl@spital-linth.ch


Centre hospitalier universitaire vaudois (CHUV)
Médicin spécialisé pour la maladie de Fabry

PD Dr. med. Frédéric Barbey
Médecin
Service de génétique médicale / Servizio medicina genetica
Centre Hospitalier Universitaire Vaudois
Hôpital Beaumont
Av Beaumont 29
1011 Lausanne
Tel:     +41 (0)21 314 76 06
Mobil:  +41 (0)79 556 50 41

Infirmière responsable / Infermiera addetta::
Madame Véronique Monzambani
Tél:     +41 (0)21 314 06 20
Mobile: +41 (0)79 556 44 23

E-Mail: frederic.barbey@chuv.ch


 

 

contattaci

fabrysuisse
CH-8000 Zürich

Modulo di contatto


Geza Henrik Varga
Presidente
8304 Wallisellen