fabrysuissePostfach 3413 · CH-8021 Zürich · Tel. 0800 05 05 55 · info@fabrysuisse.ch

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Centres de traitement en suisse

Helpline Maladies rares (allemand)

Flyer (allemand)


 

Fondation SFFD

Les professionnels médicaux qui ont des questions sur la maladie de Fabry s’adressent aux > experts de la Swiss Fondation of Fabry Disease : La SFFD est une organisation active dans toute la Suisse et qui fournit des d’informations spécialisées sur la maladie de Fabry aux médecins et au personnel médical. L’échange entre expertes et experts est au centre. SFFD


Centre hospitalier universitaire vaudois (CHUV)
Médicin spécialisé pour la maladie de Fabry

PD Dr. med. Frédéric Barbey
Médecin
Service de génétique médicale
Centre Hospitalier Universitaire Vaudois
Hôpital Beaumont
Av Beaumont 29
1011 Lausanne
Tel:     +41 (0)21 314 76 06
Mobil:  +41 (0)79 556 50 41



Infirmière responsable:
Madame Véronique Monzambani
Tél:     +41 (0)21 314 06 20
Mobile: +41 (0)79 556 44 23

E-Mail


Hôpitaux Universitaires Genève

Mehdi Namdar, MD, PhD, PD
Médecin adjoint agrégé
Cardiologie/Electrophysiologie
Service de Cardiologie
Hôpitaux Universitaires de Genève
Rue Gabrielle-Perret-Gentil 4
CH - 1205 Genève, Suisse

+41 22 372 71 92 Tel.
+41 79 553 27 88 Tel. direct
+41 22 372 72 29 Fax.
mehdi.namdar@hcuge.ch
www.hug-ge.ch


Centre hospitalier universitaire vaudois (CHUV)

Dre BALLHAUSEN Diana
Département femme-mère-enfant
Rue du Bugnon 21
CH-1011 Lausanne





Universitätsspital Zürich


Universitäres Herzzentrum Zürich
Universitätsspital Zürich

Medizinischer Beirat

PD Dr. med. Albina Nowak

Oberärztin Klinik für Endokrinologie
Rare Diseases
Universitätsspital Zürich
Raemistrasse 100
CH-8091 Zurich
Tel: +41 (0)43 253 8872
Fax +41 (0)44 255 44 47

Email   albina.nowak@usz.ch

FMH Innere Medizin
FMH Nephrologie

Zweite Affiliation:
Chefärztin Internistischer Dienst
Psychiatrische Universitätsklinik Zürich, Universität Zürich





A ÉTÉ HONORÉE PAR LE PRIX HEMMI 2017 POUR SON ÉTUDE SUR LA « CARENCE EN FER ET FATIGUE »

Liste des publications de la Dre Nowak, PD, concernant la maladie de Fabry

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7JroTHQE2/GZVavaJwGuiN9Fooht1sgGMYy6rBNBxxAl2XJpOZ6rdp2EuxflsPoN04O74p0wL0Thkxurv3mq/zEprSMmy8Ae8gOdcGp96OWyuV+zlMCGH2bQO9UPee78IP1K2GAMBJMDc8sz0XK9puOkC6zxO8IPut1qO/JXXfRg/cweLBlMllMYk9XuO5KzPZXTu8563Bt1VmngXOJJcZxOf8A7KVFkySMtN+atdE1ZcsFc08RmMiV0vB+1D5DXgQR94xXJ0XYOJwAOoz8k6zBxqNcGkCCHYe7GGO6hNrtCUYvZ7BY7YHgb/VW5XG9l65MMdmW+hH6LqmkjmPmF24p842cWSPF0TkoFIOlBaFBySEpICJEFNRQDgimgooBySCIQBRTUUAUU2VNSo4SR5fogK9SpGXrp+q5rtRxR7G+zEkva8kzAa1kXnQNF01rXDdu3EPYwYGnTvE5d5zpHe1yyXN4yTjhdM6/AwU88U0UeztsPtnUyAJYHD6SfIhdDUrhuC5Kz0Sy0e3DmmabWFpBBgEE3SMAtC18SnENPmRtK86MoRVRPXn4XNKVuJsUnuebrRj9Budgrnsm09LztTljt+ircNf7NneEOdBdyOgnko7RbQBI8uZ3WvVdnDK2+tFm1Wu7Tc8wA3Aczv5Khwt/s2lx8dTFx1DR4WrNttpNSrToe6Je/o3E+pwSfaC5zschPmfsBgqylWiFEfxHiBfecT3GiSP7W5BcgS6q+XeJx9Acm+ULore27QduY+cQqHDLHJvRjEjoBAV8bpWRJdlR9KXxkMB0MfnirNkoGADniD1zUpst6QNXZ8sMfkrdQxddESBPzAPoobLIrWd9Oi286DiboOJG+eAhTcMtptb4pi63K86QM8MNlj8THtO6BzxwzJXXdluGezp34xwDecfqtIR5VZSb4psv9n7C+nVqh2NyBI3I/JdRSOCrcNs4Y0MPizk6uOYP2UzhdPL94Lvhj4xOCcuTHxBwyP7hSSoi8EYItVipJKSbKKAjRQSQDk4JiMoB6SaigHKSlSLum6bSLZ7376q62oIwIPTIIBU7OBlnvqm1ngIPe48vr+iFCyXz/bqd+QUgjs9OTfOQyG5XJ9ruFm0U6pbXLajgf5ZhrDAMC8cbxjRdxbiB3Rk0T+QXjnHKFSrUr1ZOLziZIuxdw2+y8/6hJKCv3PR+m43PI2nVIZSfLGkgglrSeoA/JW7BSEh593EefdvH0wVCyG81rRsB0GSvUq4D3NJhjgGAnRzTLTyH5rzo7Pp86l+j4r/UafEzBG33WVaKzi+NnAFaT619kHBzTDgcw4Yz5wsqu7EOHvR6yt7PAfXT9CvwqoXV6xPww31ACfZKsVDO8npGMp9CxuY5zj3b0dQ0YyfsFQuwS5wguODdQ2SRI3KttszNK3S9oYDrJ5Aan1V6wUg2kXxEiG9BgFmMeQwk5uMeuUrSdaQ0NaSYaAMMSSidKiJLsjpUA0Pe7IwAB0yCybdaHO70AQNMtoHIZK3xO3E6CBkNB13j5lQGym6A7F1SCZ02ASyUiPs/w11aoJmJlxiTzj6L02x0WNjDIYCMGjLD803stw5tmpDuzUf6xzOg3W2KO+epXpYMdK3s4c2Tk6WilUZIyQYbwuuz058uquinCiqUeXmutI52Zr6d0jHDkpwrdWzXpBGP7xVBgLe67MZHcbhZyjQTJZSQSVSRqKaigCiglKAcimohAS0myeQzQo0JfGQBJPQFD2kN6kKQXm0y+MXSfLRAPPtC8tp47zkOp0W0zASYwGmXko+H3fZtLRAInnOsndRW2rjdGQz6qQZ/Ea92lWqO91jnHyBK8qZbDUpNHevObkcBJbJacY5rvu2tpDLE5pzrODPImXH0C87tguU7t0fixknkei8f6m03GPqe/wDSMdQc36uvt/0g4acvNSVhPz6IUgAB0C2OB8MFaatQxTaYjV79hyGq50uTpHt5sqxRc5D7Ax9SldjEjxH4cmlx+m60bLw5tKScXDxPImCdGt35q2ys0PNNgm41z3E6uaO78zHkqziS1vQu6k6roikj5rJNyk3qyhxCoXPFFje8RJnG6Pif8TjoFUtHDA2RmdSdXfktXh7AHPfqQIPkoeKVQxs8vU8/qpfZROjDtjg5wa3JsDqRn5JlofBJPktDhnDzcNR2AzE6N3Ky7W6XTpoNhoOu5UPZpFjqNO+5gORMn8IxXQ8Ks96sajhIaYaz4nnwt+6x+FUS43tAMOv7xXoPZXhoaz+IfgI7gOxzf1dpyW+DHyn8IxzT4xNWw2YtEvPePiOg5DkrYBPL6/olQbPePkNv1Uj3L1EeeMgNUFY6KVyhqNV0RQTUhwQt1EEYaZclE84hWn4hSQZN0pK97IJKnBE2ZqSajKyJHBJBJAORTUi6EAabb9RrPM9Atu0sBAb+4GSz+BUPFUPvG6PwjM+qu35JP7gZKyDIeGVSw1KZyHeHnmPujUOBO+HqoqYl3WVYY2XtGjcSoBx/+IrsaFLZr3+sNH3WBSp0KtEMuuDmhznvm86QBOGjZ2Wp20q3rY8TgxjG+cXj9Vz9MljpZm7ulud8OwuxuV4Pjrnkdeh9Z4TB+qwS6e/v2Z/8O+4C52JBOWQGWOpXV8NpEljGiGtExtOJPOVtcM7OimxvtCXVBiQTLWuPugaxlKgsLIc6BeN0DkDrJ8lvh8LNNPJ6nmeL8csvUfQNnoNbegYuDiZzOWXJUJ7sfCbp6aH6q7ZRFVzicQHTt0Gyo2bNwPvMc7zBF35KciSlSOaLbVsq0auJw3AHSITnWZtR/tHmGMBzyJnPpghZaBc5zufpAxj0UFapeMe40XiMg6MGt6EqtliPi1vMYAhnut1eRgHO2A0CxKLHPJknEx9yOSvcVB7rM3uxcfhnl9la4bZxhsPzx+f0UWaKkjb4Bwj2r2047g7z+nw+f0XcVDecGt8LcBtI/LJZnA6dyjDR33uI/Va1mo3ZbOIj5r1MEFGKPOyzcpE3JROdoFJU5JrWR+a6TIjfsg4JNxKc9XIKz2qwzwqIhTNyQAhBFJCDFSSSXOWCEUkkAVHXy8wkkgNjhn9Fv4T905nh8kEldegIqPib0P2VixeN3QJJKqB5/wBof9XX/F/4tVbg/wDqqH/Fb90kl4sv2/5v7n16/dPyf4noFbIrD4X/APokkvWl5l/U+TjplRudXoqp/qf8t32QSXnZPOzsh5SSz/0D+F31WbQz8mIJKHokqWv/AFDvL/tK0bJkOjEUlUu9HccJzZ0d9VoM8b+o+iSS9fHpHnS2wuzSOiSS1KkNLNGqkkrsESm0SSUMgakkkhB//9k=


Universitätskinderspital Zürich
Prof Dr. med. M. Baumgartner
PD Dr. med. et phil. nat.  Marianne Rohrbach
Division du métabolisme en particulier des maladies de surcharge lysosomale
Hôpital des enfants – Fondation Eleonore
Steinwiesstrasse 75
CH-8032 Zürich
Telefon +41 44 266 84 08
marianne.rohrbach@kispi.uzh.ch

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Spital Lindt

PD Dr. med. Pierre-Alexandre Krayenbühl

Chefarzt Klinik für Innere Medizin
Spital Linth
Gasterstrasse 25
8730 Uznach
Tel.: +41 (0)55 285 42 60
Fax: +41 (0)55 285 40 90
Email: Pierre-Alexandre.Krayenbuehl@spital-linth.ch


Contactez-nous

fabrysuisse
CH-8000 Zürich

Formulaire de contact


Geza Henrik Varga
Président
8304 Wallisellen